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                                                      Disclaimer:  
The information on this website does not constitute legal advice.  It is solely for
informational and educational purposes.  It is not intended to be a legal
recommendation, nor should it substitute for obtaining legal counsel from your own
attorney.  It may or may not  represent the current law in your state or locality.  
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Information by Special Need

Allergies

Allergy & Asthma Network Mothers of Asthmatics
(AANMA)
2751 Prosperity Ave., Suite 150
Fairfax, VA 22031
Phone: 800-878-4403
Fax: 703-573-7794
www.aanma.org

American Academy of Allergy, Asthma & Immunology
555 East Wells Street
Suite 1100
Milwaukee, WI 53202-3823
Phone:  (414) 272-6071
Patient Information and Physician Referral Line:
(800) 822-2762
www.aaaai.org

The American Lung Association®
61 Broadway, 6th Floor
NY, NY 10006
www.lungusa.org

Asthma and Allergy Foundation of America
1125 Fifteenth Street, NW
Suite 502
Washington, DC 20005
202-466-7643
800-727-8462
www.aafa.org

National Institute of Allergy and Infectious Diseases
Office of Communication
Building 31, Room 7A50
9000 Rockville Pike
Bethesda, MD 20892
301-496-5717 (voice)
www3.niaid.nih.gov

Asthma

Allergy & Asthma Network Mothers of Asthmatics
(AANMA)
2751 Prosperity Ave., Suite 150
Fairfax, VA 22031
Phone: 800-878-4403
Fax: 703-573-7794
www.aanma.org

American Academy of Allergy, Asthma & Immunology
555 East Wells Street
Suite 1100
Milwaukee, WI 53202-3823
Phone:  (414) 272-6071
Patient Information and Physician Referral Line:
(800) 822-2762
www.aaaai.org

American College of Allergy, Asthma & Immunology
85 West Algonquin Road, Suite 550
Arlington Heights, IL 60005
http://www.acaai.org

The American Lung Association®
61 Broadway, 6th Floor
NY, NY 10006
www.lungusa.org

Asthma and Allergy Foundation of America
1125 Fifteenth Street, NW
Suite 502
Washington, DC 20005
202-466-7643
800-727-8462
www.aafa.org

Attention Deficit Disorder

Attention Disorders Association of Parents and
Professionals Together (ADAPPT)
P.O. Box 126
Oak Forest, IL 60452
president@adappt.org
www.adappt.org

Child Development Institute
3528 E Ridgeway Road
Orange, California 92867
Voice (714) 998-8617
www.childdevelopmentinfo.org

Children and Adults with Attention Deficit Disorders
CHADD National Office
8181 Professional Place - Suite 150
Landover, MD 20785
Tel: 301-306-7070
Fax: 301-306-7090

New Ideas, Inc.
27400 Oakflat Drive
Tehachapi, CA 93561
661-821-1324
www.newideas.net

One ADD Place
(866) 846-0633
www.oneaddplace.com

Auditory Processing Disorder

American Academy of Audiology
8300 Greensboro Drive, Suite 750
McLean, VA 22102
Voice: (703) 790-8466
Toll-free: (800) AAA-2336
TTY: (703) 790-8466
www.audiology.org

American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20852
Voice: (301) 897-3279
Toll-free: (800) 638-8255
E-mail: actioncenter@asha.org
www.asha.org

Kaufman Children's Center for Speech, Language,
Sensory-Motor and Learning Potential, Inc.
6625 Daly Road
West Bloomfield, MI 48322
Phone:  248-737-3430
Fax:  248-737-3433
www.kidspeech.com

National Coalition on
Auditory Processing Disorders, Inc.
www.ncapd.org

NIDCD Information Clearinghouse
1 Communication Avenue
Bethesda, MD 20892-3456
Toll Free: (800) 241-1044
TTY: (800) 241-1055
E-mail: nidcdinfo@nidcd.nih.gov
www.nidcd.nih.gov

The Mozart Effect Resource Center
3526 Washington Avenue
Saint Louis, MO 63103-1019
314-531-4756
www.mozarteffect.com

Autism

Autism Education Network
686 Regas Drive
Campbell, CA 95008
Phone:  408-558-9404
Fax: 408-608-0356
www.autismeducation.net

Autism Society of America
7910 Woodmont Avenue, Suite 650
Bethesda, MD 20814
301-657-0881
800-328-8476
www.autism-society.org

Cure Autism Now
5455 Wilshire Boulevard, Suite 2250
Los Angeles, CA 90036 - 4272
www.cureautismnow.org

National Autism Association (NAA)
1330 W. Schatz Road
Nixa, MO 65714
877-NAA-AUTISM
877-622-2884
www.nationalautismassociation.org

NICHCY
P.O. Box 1492
Washington, DC 20013
(800) 695-0285 · v/tty
(202) 884-8441 · fax
nichcy@aed.org
www.nichcy.org

Birth Defects

Association of Birth Defect Children
827 Irma Avenue
Orlando, FL 32803
407-245-7035 (voice)
800-313-2232 (voice)


Birth Defects Research for Children, Inc.
www.birthdefects.org

Center for Disease Control and Prevention
1600 Clifton Rd
Atlanta, GA 30333, U.S.A
Tel: (404) 639-3311
Public Inquiries: (404) 639-3534 / (800) 311-3435
www.cdc.gov

International Clearinghouse for Birth Defects
www.icbd.org

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
914-428-7100 (voice)
www.marchofdimes.com

Blindness and Visual Impairments

American Council of the Blind
1155 Fifteenth Street, NW, Suite 720
Washington, DC 20005
202-467-5081
800-424-8666
www.acb.org

American Foundation for the Blind
11 Penn Plaza
New York NY 10001
212-507-7600
800-232-5463
www.afb.org

National Association for Visually Handicapped
22 West 21st Street. 6th Floor
New York, NY 10010
212-889-3141
www.navh.org

Recording for the Blind and Dyslexic
20 Roszel Road
Princeton, NJ 08540
609-452-0606
www.rfbd.org

Optometric Extension Program Foundation, Inc.
1921 East Carnegie Avenue
Suite 3-L
Santa Ana, CA 92705-5501
949-250-8070
www.oep.org

Parents Active for Vision Education (P.A.V.E.)
National Headquarters
4135 54th place
SanDiego, CA 92105-2303
619-287-0081
800-PAVE-988
www.pavevision.org

Cerebral Palsy

4 My Child
39555 Orchard Hill Place, Suite 365
Novi, MI 48375
1-800-4MYCHILD
1-800-469-2445
Email: help@4mychild.com
www.cerebralpalsy.org

Cerebral Palsy Information
info@cerebralpalsyinfo.org
www.cerebralpalsyinfo.org

Children's Hemiplegia & Stroke Association (CHASA)
Suite 305, #149
4101 W. Green Oaks
Arlington, TX  76016
817-492-4325
www.chasa.org

United Cerebral Palsy Associations (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
202-776-0406 (voice/TDD)
800-872-5827
www.ucp.org

Chronic Illness

Association for the Care of Children's Health (ACCH)
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814
301-654-6540 ext. 306 (voice)
www.acch.org

Candlelighters Childhood Cancer Foundation
7910 Woodmont Avenue, Suite 460
Bethesda, MD 20814
800-366-2223
www.candlelighters.org

Center for Children with Chronic Illness and Disability
University of Minnesota
Box 721 UMHC
420 Delaware Street, SE
Minneapolis, MN 55455
612-626-4032 (voice)
612-624-3939 (TDD)

Children's Hospice International
700 Princess Street, Lower Level
Alexandria, VA 22314
703-684-0330
800-242-4453
www.chionline.org

Cleft Palate

Cleft Palate Foundation
1218 Grandview Ave.
Pittsburgh, PA 15211
800-242-5338
www.cleftline.org

SMILES
www.cleft.org

Wide Smiles
P.O.  Box 5153
Stockton, CA 95205-0153
Phone: 209-942-2812
Fax: 209-464-1497
josmiles@yahoo.com
www.widesmiles.org


Craniofacial Differences

AboutFace
P.O. Box 93
Limekiln, PA 19535
800-225-3223

FACES
The National Association for the Craniofacially
Handicapped
P.O. Box 11082
Chattanooga, TN 37401
800-332-2373

Deaf and Hearing Impaired

Alexander Graham Bell Association for the Deaf
3417 Volta Place, NW
Washington, DC 20007
202-337-5220 (voice/TDD)
www.agbell.org

American Society for Deaf Children
2848 Arden Way, Suite 210
Sacramento, CA 95825
800-942-2732 (voice/TDD)
www.deafchildren.org

National Information Center on Deafness
Gallaudet University
800 Florida Avenue, NE
Washington, DC 20002
202-651-5051 (voice)
202-651-5052 (TDD)
www.clerccenter.gallaudet.edu

Registry of Interpreters for the Deaf
8630 Fenton Street, Suite 324
Silver Spring, MD 20910
301-608-0050 (voice/TDD)
www.rid.org

Hands and Voices
www.handsandvoices.org


Deaf/Blind

American Association of the Deaf/Blind
814 Thayer Avenue, Suite 302
Silver Spring, MD 20910
301-588-6545 (TDD)
www.aadb.org

National Information Clearinghouse on Children Who Are
Deaf-Blind
345 N. Monmouth Avenue
Monmouth, OR 97361
800-438-9376 (voice)
800-854-7013 (TDD)
www.eric.ed.gov

Developmental Delays

Administration on Developmental Disabilities (ADD)
Administration for Children and Families
U.S. Department of Health and Human Services
370 L'Enfant Promenade, SW
Washington, DC 20447
202-690-6590
www.acf.hhs.gov

Developmental Delay Resources (DDR)
4401 East-West Highway
Suite 207
Bethesda, MD 20814
301-652-2263
www.devdelay.org

National Information Center for Children and Youth with
Disabilities
P.O. Box 1492
Washington, DC 20013-1492
202-884-8200 (voice/TDD)
800-695-0285 (voice/TDD)
www.nichcy.org

ZERO to THREE
734 15th Street NW
Suite 1000
Washington, DC 20005-1013
202-638-1144
www.zerotothree.org

Diabetes

American Diabetes Association
National Service Center
1660 Duke Street
Alexandria, VA 22314
703-549-1500
800-232-3472
www.diabetes.org

Juvenile Diabetes Foundation International
432 Park Avenue, S.
16th Floor
New York, NY 10016
212-889-7575
800-533-2873
www.jdrf.org

National Diabetes Information Clearinghouse
One Information Way
Bethesda, MD 20892
301-654-3327 (voice)
www.diabetes.niddk.nih.gov

Down Syndrome

Directory of Down Syndrome Sites
www.downsyndrome.com

Down Syndrome Information Network
www.information.downsed.org

National Down Syndrome Congress
1605 Chantilly Drive, Suite 250
Atlanta, GA 30324
404-633-1555
800-232-6372
www.ndsccenter.org

National Down Syndrome Society
666 Broadway, 8th Floor
New York, NY 10012
212-460-9330
800-221-4602
www.ndss.org

Dyslexia, Dyscalculia, Dysgraphia

Davis Dyslexia Association International
Phone: 1-650-692-7141
Fax: 1-650-692-7075
www.dyslexia.com

Dyscalculia.org
Renee M. Newman, M.S., Director
8053 N. Delaney Rd.
Henderson, MI 48841 U.S.A.  
(313) 582-6300
renee@dyscalculia.org
www.dyscalculia.org

International Dyslexia Organization
40 York Rd., 4th Floor
Baltimore, MD 21204-5202
Telephone: 410-296-0232
Fax: 410-321-5069
www.interdys.org

The Levinson Medical Center for Learning Disabilities
98 Cuttermill Road, Suite 90,
Great Neck, NY 11021
Tel: (516) 482-2888
Tel: (800) 334-READ
Tel: (800) 8-PHOBIA
Fax: (516) 482-2480
www.levinsonmedical.com

Orton Dyslexia Society
Chester Building, Suite 382
8600 LaSalle Road
Baltimore, MD 21286
410-296-0232
800-222-3123
www.interdys.org

Dyspraxia (Developmental Coordination Disorder)

Bright Minds Institute
8 Funston Avenue
The Presidio
San Francisco, CA 94129
Phone: (415) 561-6755
Fax: (415) 561-6759
info@brightmindsinstitute.com
www.brightmindsinstitute.com

Bright Minds Institute
814 South Westgate
Los Angeles, CA 90049
(At San Vicente Blvd.)
Phone: (310) 820-1084
info@brightmindsinstitute.com
www.brightmindsinstitute.com

Dyspraxia Foundation
www.dyspraxiafoundaiton.org.uk

Emotional Disorders

Federation of Families for Children's Mental Health
1021 Prince Street
Alexandria, VA 22314
703-684-7710
www.ffcmh.org

National Institute of Mental Health
Information Resources and Inquiries Branch
5600 Fishers Lane
Room 7C-02
Rockville, MD 20857
301-443-4513 (voice)
301-443-8431 (TDD)

National Mental Health Association
1021 Prince Street
Alexandria, VA 22314
703-684-7722
800-969-6642
www.nmha.org

Epilepsy and Seizure Disorders

Epilepsy Foundation of America
4351 Garden City Drive
Landover, MD 20785
301-459-3700
300-332-1000 (voice)
800-332-2070 (TDD)

Epilepsy Therapy Development Project
www.epilepsy.com

Fetal Alcohol Syndrome

www.download.ncadi.samhsa.gov/prevline/pdfs/rpo1025.
pdf
www.fasdcenter.samhsa.gov/documents/Reach_To_Teac
h_Final_011107.pdf




Fragile X Syndrome

National Fragile X Foundation
1441 York Street
Suite 303
Denver, CO 80206
303-333-6155
800-688-876
www.fragilex.org

Fragile X Research Foundation
45 Pleasant St.
Newburyport, MA 01950
Phone: 978-462-1866
www.fraxa.org

Head Injury

Brain Injury Association of America
8201 Greensboro Drive
Suite 611
McLean, VA 22102
Phone: (703) 761-0750
www.biausa.org

Brain Trauma Foundation
708 Third Avenue
New York, NY 10017
212) 772-0608
www.braintrauma.org

National Head Injury Foundation
1776 Massachusetts Avenue, NW
Suite 100
Washington, DC 20036
202-296-6443
800-444-6443

Learning Disabilities

Learning Disabilities Association of America
4156 Library Road
Pittsburgh, PA 15234
412-341-1515
www.ldaamerica.org

National Center for Learning Disabilities
381 Park Avenue, South
Suite 1420
New York, NY 20016
212-545-7510
www.ncld.org

The Council for Exceptional Children (CEC)
1920 Association Drive
Reston, VA 22091-1589
888-CEC-SPED
www.cec.sped.org

National Institute of Child Health and Human
Development
Center for Research for Mothers and Children
Child Development and Behavior Branch
Executive Building Room 4B05
6100 Executive Blvd.
MSC 7510
Bethesda, MD 20892-7510
301-496-9849

Schwab Learning
www.schwablearning.org

Mental Retardation

The Arc
National Headquarters
500 East Border Street
Suite 300
P.O. Box 1047
Arlington, TX 76010
817-261-6003
800-433-5255

Little City
Main Location
1760 West Algonquin Road
Palatine, IL 60067-4799
(847) 358-5510
www.littlecity.org

Little City
Chicago Office
700 N. Sacramento, Suite 220
Chicago, IL 60612-1026
(773) 265-1539
www.littlecity.org

Metabolic Disorders

Organic Acidemia Association
13210 35th Ave North
Plymouth, MN 55441
763-559-1797
763-694-0017 fax
oaanews@aol.com
www.oaanews.org

Propionic Acidemia Association
1963 McCraren
Highland Park, IL 60035
847-579-1824
paf@pafoundation.com
www.pafoundation.com

Muscular Dystrophy

Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718
602-529-2000
800-572-1717
www.mda.org

Muscular Dystrophy Campaign
National Office
7-11 Prescott Place
London
SW4 6BS
T: 020 7720 8055
F: 020 7498 0670
info@muscular-dystrophy.org
www.muscular-dystrophy.org

Rare Disorders

National Health Information Clearinghouse and National
Information Center for Orphan Drugs and Rare Diseases
P.O. Box 1133
Washington, DC 20013
800-336-4797

National Organization for Rare Disorders (NORD)
100 Route 37
P.O. Box 8923
New Fairfield, CT 06812
2030746-6518
800-999-6673
www.rarediseases.org

Office of Rare Diseases
National Institutes of Health
6100 Executive Boulevard
Room 3B01, MSC 7518
Bethesda, Maryland 20892-7518
(301) 402-4336 (voice)
(301) 480-9655 (fax)
ord@od.nih.gov
www.rarediseases.info.nih.gov


Respiratory Diseases

American Lung Association
1740 Broadway
New York, NY 10019
212-315-8700
800-586-4872
www.lungusa.org

Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
301-951-4422
800-344-4823
www.cff.org

Rett Syndrome

Bright Tots
RSRF Office
4600 Devitt Drive
Cincinnati, OH 45246
Tel: (513) 874-3020
Fax: (513) 874-2520
www.brighttots.org

International Rett Syndrome Association
9121 Piscataway Road, #2B
Clinton, MD 20735
Phone:  800-818-RETT
Fax:  301-856-3336
www.rettsyndrome.org

Rett Syndrome Research Foundation
RSRF Office
4600 Devitt Drive
Cincinnati, OH 45246
Tel: (513) 874-3020
Fax: (513) 874-2520
www.rsrf.org

Sensory Integration Dysfunction

Sensory Integration International (SII) / The Ayres Clinic
1602 Cabrillo Avenue
Torrance, CA 90501-2817
310-320-2335
www.sensoryint.com

American Occupational Therapy Association, Inc.
(AOTA)
P.O. Box 31220
Bethesda, MD 20824-1220
301-652-7711
www.aota.org

Speech and Language Disorders

American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20850
301-897-5700 (voice/TDD)
800-638-8255 (voice/TDD)
www.asha.org

Spina Bifida

Spina Bifida Association of America
4590 MacArthur Boulevard
Rockville, MD 20852
301-805-0213
800-621-3141
www.sbaa.org

Tourette Syndrome

Tourette Syndrome Association of America
42-40 Bell Bouevard
Bayside, NY 11361
718-224-2999
800-237-0717
www.twa-usa.org

Tourette Syndrome Online
3139 West Holcombe Blvd., Suite 265
Houston, Texas 77025
www.tourette-syndrome.com

Tourette Syndrome Plus
www.tourettesyndrome.net

Traumatic Brain Injury

Brain Injury Association of America
8201 Greensboro Drive
Suite 611
McLean, VA 22102
Phone: (703) 761-0750
www.biausa.org

Brain Trauma Foundation
708 Third Avenue
New York, NY 10017
212) 772-0608
www.braintrauma.org

National Head Injury Foundation
1776 Massachusetts Avenue, NW
Suite 100
Washington, DC 20036
202-296-6443
800-444-6443