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| Information by Special Need Allergies Allergy & Asthma Network Mothers of Asthmatics (AANMA) 2751 Prosperity Ave., Suite 150 Fairfax, VA 22031 Phone: 800-878-4403 Fax: 703-573-7794 www.aanma.org American Academy of Allergy, Asthma & Immunology 555 East Wells Street Suite 1100 Milwaukee, WI 53202-3823 Phone: (414) 272-6071 Patient Information and Physician Referral Line: (800) 822-2762 www.aaaai.org The American Lung Association® 61 Broadway, 6th Floor NY, NY 10006 www.lungusa.org Asthma and Allergy Foundation of America 1125 Fifteenth Street, NW Suite 502 Washington, DC 20005 202-466-7643 800-727-8462 www.aafa.org National Institute of Allergy and Infectious Diseases Office of Communication Building 31, Room 7A50 9000 Rockville Pike Bethesda, MD 20892 301-496-5717 (voice) www3.niaid.nih.gov Asthma Allergy & Asthma Network Mothers of Asthmatics (AANMA) 2751 Prosperity Ave., Suite 150 Fairfax, VA 22031 Phone: 800-878-4403 Fax: 703-573-7794 www.aanma.org American Academy of Allergy, Asthma & Immunology 555 East Wells Street Suite 1100 Milwaukee, WI 53202-3823 Phone: (414) 272-6071 Patient Information and Physician Referral Line: (800) 822-2762 www.aaaai.org American College of Allergy, Asthma & Immunology 85 West Algonquin Road, Suite 550 Arlington Heights, IL 60005 http://www.acaai.org The American Lung Association® 61 Broadway, 6th Floor NY, NY 10006 www.lungusa.org Asthma and Allergy Foundation of America 1125 Fifteenth Street, NW Suite 502 Washington, DC 20005 202-466-7643 800-727-8462 www.aafa.org Attention Deficit Disorder Attention Disorders Association of Parents and Professionals Together (ADAPPT) P.O. Box 126 Oak Forest, IL 60452 president@adappt.org www.adappt.org Child Development Institute 3528 E Ridgeway Road Orange, California 92867 Voice (714) 998-8617 www.childdevelopmentinfo.org Children and Adults with Attention Deficit Disorders CHADD National Office 8181 Professional Place - Suite 150 Landover, MD 20785 Tel: 301-306-7070 Fax: 301-306-7090 New Ideas, Inc. 27400 Oakflat Drive Tehachapi, CA 93561 661-821-1324 www.newideas.net One ADD Place (866) 846-0633 www.oneaddplace.com Auditory Processing Disorder American Academy of Audiology 8300 Greensboro Drive, Suite 750 McLean, VA 22102 Voice: (703) 790-8466 Toll-free: (800) AAA-2336 TTY: (703) 790-8466 www.audiology.org American Speech-Language-Hearing Association 10801 Rockville Pike Rockville, MD 20852 Voice: (301) 897-3279 Toll-free: (800) 638-8255 E-mail: actioncenter@asha.org www.asha.org Kaufman Children's Center for Speech, Language, Sensory-Motor and Learning Potential, Inc. 6625 Daly Road West Bloomfield, MI 48322 Phone: 248-737-3430 Fax: 248-737-3433 www.kidspeech.com National Coalition on Auditory Processing Disorders, Inc. www.ncapd.org NIDCD Information Clearinghouse 1 Communication Avenue Bethesda, MD 20892-3456 Toll Free: (800) 241-1044 TTY: (800) 241-1055 E-mail: nidcdinfo@nidcd.nih.gov www.nidcd.nih.gov The Mozart Effect Resource Center 3526 Washington Avenue Saint Louis, MO 63103-1019 314-531-4756 www.mozarteffect.com Autism Autism Education Network 686 Regas Drive Campbell, CA 95008 Phone: 408-558-9404 Fax: 408-608-0356 www.autismeducation.net Autism Society of America 7910 Woodmont Avenue, Suite 650 Bethesda, MD 20814 301-657-0881 800-328-8476 www.autism-society.org Cure Autism Now 5455 Wilshire Boulevard, Suite 2250 Los Angeles, CA 90036 - 4272 www.cureautismnow.org National Autism Association (NAA) 1330 W. Schatz Road Nixa, MO 65714 877-NAA-AUTISM 877-622-2884 www.nationalautismassociation.org NICHCY P.O. Box 1492 Washington, DC 20013 (800) 695-0285 · v/tty (202) 884-8441 · fax nichcy@aed.org www.nichcy.org Birth Defects Association of Birth Defect Children 827 Irma Avenue Orlando, FL 32803 407-245-7035 (voice) 800-313-2232 (voice) Birth Defects Research for Children, Inc. www.birthdefects.org Center for Disease Control and Prevention 1600 Clifton Rd Atlanta, GA 30333, U.S.A Tel: (404) 639-3311 Public Inquiries: (404) 639-3534 / (800) 311-3435 www.cdc.gov International Clearinghouse for Birth Defects www.icbd.org March of Dimes Birth Defects Foundation 1275 Mamaroneck Avenue White Plains, NY 10605 914-428-7100 (voice) www.marchofdimes.com Blindness and Visual Impairments American Council of the Blind 1155 Fifteenth Street, NW, Suite 720 Washington, DC 20005 202-467-5081 800-424-8666 www.acb.org American Foundation for the Blind 11 Penn Plaza New York NY 10001 212-507-7600 800-232-5463 www.afb.org National Association for Visually Handicapped 22 West 21st Street. 6th Floor New York, NY 10010 212-889-3141 www.navh.org Recording for the Blind and Dyslexic 20 Roszel Road Princeton, NJ 08540 609-452-0606 www.rfbd.org Optometric Extension Program Foundation, Inc. 1921 East Carnegie Avenue Suite 3-L Santa Ana, CA 92705-5501 949-250-8070 www.oep.org Parents Active for Vision Education (P.A.V.E.) National Headquarters 4135 54th place SanDiego, CA 92105-2303 619-287-0081 800-PAVE-988 www.pavevision.org Cerebral Palsy 4 My Child 39555 Orchard Hill Place, Suite 365 Novi, MI 48375 1-800-4MYCHILD 1-800-469-2445 Email: help@4mychild.com www.cerebralpalsy.org Cerebral Palsy Information info@cerebralpalsyinfo.org www.cerebralpalsyinfo.org Children's Hemiplegia & Stroke Association (CHASA) Suite 305, #149 4101 W. Green Oaks Arlington, TX 76016 817-492-4325 www.chasa.org United Cerebral Palsy Associations (UCP) 1660 L Street, NW, Suite 700 Washington, DC 20036 202-776-0406 (voice/TDD) 800-872-5827 www.ucp.org Chronic Illness Association for the Care of Children's Health (ACCH) 7910 Woodmont Avenue, Suite 300 Bethesda, MD 20814 301-654-6540 ext. 306 (voice) www.acch.org Candlelighters Childhood Cancer Foundation 7910 Woodmont Avenue, Suite 460 Bethesda, MD 20814 800-366-2223 www.candlelighters.org Center for Children with Chronic Illness and Disability University of Minnesota Box 721 UMHC 420 Delaware Street, SE Minneapolis, MN 55455 612-626-4032 (voice) 612-624-3939 (TDD) Children's Hospice International 700 Princess Street, Lower Level Alexandria, VA 22314 703-684-0330 800-242-4453 www.chionline.org Cleft Palate Cleft Palate Foundation 1218 Grandview Ave. Pittsburgh, PA 15211 800-242-5338 www.cleftline.org SMILES www.cleft.org Wide Smiles P.O. Box 5153 Stockton, CA 95205-0153 Phone: 209-942-2812 Fax: 209-464-1497 josmiles@yahoo.com www.widesmiles.org Craniofacial Differences AboutFace P.O. Box 93 Limekiln, PA 19535 800-225-3223 FACES The National Association for the Craniofacially Handicapped P.O. Box 11082 Chattanooga, TN 37401 800-332-2373 Deaf and Hearing Impaired Alexander Graham Bell Association for the Deaf 3417 Volta Place, NW Washington, DC 20007 202-337-5220 (voice/TDD) www.agbell.org American Society for Deaf Children 2848 Arden Way, Suite 210 Sacramento, CA 95825 800-942-2732 (voice/TDD) www.deafchildren.org National Information Center on Deafness Gallaudet University 800 Florida Avenue, NE Washington, DC 20002 202-651-5051 (voice) 202-651-5052 (TDD) www.clerccenter.gallaudet.edu Registry of Interpreters for the Deaf 8630 Fenton Street, Suite 324 Silver Spring, MD 20910 301-608-0050 (voice/TDD) www.rid.org Hands and Voices www.handsandvoices.org Deaf/Blind American Association of the Deaf/Blind 814 Thayer Avenue, Suite 302 Silver Spring, MD 20910 301-588-6545 (TDD) www.aadb.org National Information Clearinghouse on Children Who Are Deaf-Blind 345 N. Monmouth Avenue Monmouth, OR 97361 800-438-9376 (voice) 800-854-7013 (TDD) www.eric.ed.gov Developmental Delays Administration on Developmental Disabilities (ADD) Administration for Children and Families U.S. Department of Health and Human Services 370 L'Enfant Promenade, SW Washington, DC 20447 202-690-6590 www.acf.hhs.gov Developmental Delay Resources (DDR) 4401 East-West Highway Suite 207 Bethesda, MD 20814 301-652-2263 www.devdelay.org National Information Center for Children and Youth with Disabilities P.O. Box 1492 Washington, DC 20013-1492 202-884-8200 (voice/TDD) 800-695-0285 (voice/TDD) www.nichcy.org ZERO to THREE 734 15th Street NW Suite 1000 Washington, DC 20005-1013 202-638-1144 www.zerotothree.org Diabetes American Diabetes Association National Service Center 1660 Duke Street Alexandria, VA 22314 703-549-1500 800-232-3472 www.diabetes.org Juvenile Diabetes Foundation International 432 Park Avenue, S. 16th Floor New York, NY 10016 212-889-7575 800-533-2873 www.jdrf.org National Diabetes Information Clearinghouse One Information Way Bethesda, MD 20892 301-654-3327 (voice) www.diabetes.niddk.nih.gov Down Syndrome Directory of Down Syndrome Sites www.downsyndrome.com Down Syndrome Information Network www.information.downsed.org National Down Syndrome Congress 1605 Chantilly Drive, Suite 250 Atlanta, GA 30324 404-633-1555 800-232-6372 www.ndsccenter.org National Down Syndrome Society 666 Broadway, 8th Floor New York, NY 10012 212-460-9330 800-221-4602 www.ndss.org Dyslexia, Dyscalculia, Dysgraphia Davis Dyslexia Association International Phone: 1-650-692-7141 Fax: 1-650-692-7075 www.dyslexia.com Dyscalculia.org Renee M. Newman, M.S., Director 8053 N. Delaney Rd. Henderson, MI 48841 U.S.A. (313) 582-6300 renee@dyscalculia.org www.dyscalculia.org International Dyslexia Organization 40 York Rd., 4th Floor Baltimore, MD 21204-5202 Telephone: 410-296-0232 Fax: 410-321-5069 www.interdys.org The Levinson Medical Center for Learning Disabilities 98 Cuttermill Road, Suite 90, Great Neck, NY 11021 Tel: (516) 482-2888 Tel: (800) 334-READ Tel: (800) 8-PHOBIA Fax: (516) 482-2480 www.levinsonmedical.com Orton Dyslexia Society Chester Building, Suite 382 8600 LaSalle Road Baltimore, MD 21286 410-296-0232 800-222-3123 www.interdys.org Dyspraxia (Developmental Coordination Disorder) Bright Minds Institute 8 Funston Avenue The Presidio San Francisco, CA 94129 Phone: (415) 561-6755 Fax: (415) 561-6759 info@brightmindsinstitute.com www.brightmindsinstitute.com Bright Minds Institute 814 South Westgate Los Angeles, CA 90049 (At San Vicente Blvd.) Phone: (310) 820-1084 info@brightmindsinstitute.com www.brightmindsinstitute.com Dyspraxia Foundation www.dyspraxiafoundaiton.org.uk Emotional Disorders Federation of Families for Children's Mental Health 1021 Prince Street Alexandria, VA 22314 703-684-7710 www.ffcmh.org National Institute of Mental Health Information Resources and Inquiries Branch 5600 Fishers Lane Room 7C-02 Rockville, MD 20857 301-443-4513 (voice) 301-443-8431 (TDD) National Mental Health Association 1021 Prince Street Alexandria, VA 22314 703-684-7722 800-969-6642 www.nmha.org Epilepsy and Seizure Disorders Epilepsy Foundation of America 4351 Garden City Drive Landover, MD 20785 301-459-3700 300-332-1000 (voice) 800-332-2070 (TDD) Epilepsy Therapy Development Project www.epilepsy.com Fetal Alcohol Syndrome www.download.ncadi.samhsa.gov/prevline/pdfs/rpo1025. www.fasdcenter.samhsa.gov/documents/Reach_To_Teac h_Final_011107.pdf Fragile X Syndrome National Fragile X Foundation 1441 York Street Suite 303 Denver, CO 80206 303-333-6155 800-688-876 www.fragilex.org Fragile X Research Foundation 45 Pleasant St. Newburyport, MA 01950 Phone: 978-462-1866 www.fraxa.org Head Injury Brain Injury Association of America 8201 Greensboro Drive Suite 611 McLean, VA 22102 Phone: (703) 761-0750 www.biausa.org Brain Trauma Foundation 708 Third Avenue New York, NY 10017 212) 772-0608 www.braintrauma.org National Head Injury Foundation 1776 Massachusetts Avenue, NW Suite 100 Washington, DC 20036 202-296-6443 800-444-6443 Learning Disabilities Learning Disabilities Association of America 4156 Library Road Pittsburgh, PA 15234 412-341-1515 www.ldaamerica.org National Center for Learning Disabilities 381 Park Avenue, South Suite 1420 New York, NY 20016 212-545-7510 www.ncld.org The Council for Exceptional Children (CEC) 1920 Association Drive Reston, VA 22091-1589 888-CEC-SPED www.cec.sped.org National Institute of Child Health and Human Development Center for Research for Mothers and Children Child Development and Behavior Branch Executive Building Room 4B05 6100 Executive Blvd. MSC 7510 Bethesda, MD 20892-7510 301-496-9849 Schwab Learning www.schwablearning.org Mental Retardation The Arc National Headquarters 500 East Border Street Suite 300 P.O. Box 1047 Arlington, TX 76010 817-261-6003 800-433-5255 Little City Main Location 1760 West Algonquin Road Palatine, IL 60067-4799 (847) 358-5510 www.littlecity.org Little City Chicago Office 700 N. Sacramento, Suite 220 Chicago, IL 60612-1026 (773) 265-1539 www.littlecity.org Metabolic Disorders Organic Acidemia Association 13210 35th Ave North Plymouth, MN 55441 763-559-1797 763-694-0017 fax oaanews@aol.com www.oaanews.org Propionic Acidemia Association 1963 McCraren Highland Park, IL 60035 847-579-1824 paf@pafoundation.com www.pafoundation.com Muscular Dystrophy Muscular Dystrophy Association 3300 East Sunrise Drive Tucson, AZ 85718 602-529-2000 800-572-1717 www.mda.org Muscular Dystrophy Campaign National Office 7-11 Prescott Place London SW4 6BS T: 020 7720 8055 F: 020 7498 0670 info@muscular-dystrophy.org www.muscular-dystrophy.org Rare Disorders National Health Information Clearinghouse and National Information Center for Orphan Drugs and Rare Diseases P.O. Box 1133 Washington, DC 20013 800-336-4797 National Organization for Rare Disorders (NORD) 100 Route 37 P.O. Box 8923 New Fairfield, CT 06812 2030746-6518 800-999-6673 www.rarediseases.org Office of Rare Diseases National Institutes of Health 6100 Executive Boulevard Room 3B01, MSC 7518 Bethesda, Maryland 20892-7518 (301) 402-4336 (voice) (301) 480-9655 (fax) ord@od.nih.gov www.rarediseases.info.nih.gov Respiratory Diseases American Lung Association 1740 Broadway New York, NY 10019 212-315-8700 800-586-4872 www.lungusa.org Cystic Fibrosis Foundation 6931 Arlington Road Bethesda, MD 20814 301-951-4422 800-344-4823 www.cff.org Rett Syndrome Bright Tots RSRF Office 4600 Devitt Drive Cincinnati, OH 45246 Tel: (513) 874-3020 Fax: (513) 874-2520 www.brighttots.org International Rett Syndrome Association 9121 Piscataway Road, #2B Clinton, MD 20735 Phone: 800-818-RETT Fax: 301-856-3336 www.rettsyndrome.org Rett Syndrome Research Foundation RSRF Office 4600 Devitt Drive Cincinnati, OH 45246 Tel: (513) 874-3020 Fax: (513) 874-2520 www.rsrf.org Sensory Integration Dysfunction Sensory Integration International (SII) / The Ayres Clinic 1602 Cabrillo Avenue Torrance, CA 90501-2817 310-320-2335 www.sensoryint.com American Occupational Therapy Association, Inc. (AOTA) P.O. Box 31220 Bethesda, MD 20824-1220 301-652-7711 www.aota.org Speech and Language Disorders American Speech-Language-Hearing Association 10801 Rockville Pike Rockville, MD 20850 301-897-5700 (voice/TDD) 800-638-8255 (voice/TDD) www.asha.org Spina Bifida Spina Bifida Association of America 4590 MacArthur Boulevard Rockville, MD 20852 301-805-0213 800-621-3141 www.sbaa.org Tourette Syndrome Tourette Syndrome Association of America 42-40 Bell Bouevard Bayside, NY 11361 718-224-2999 800-237-0717 www.twa-usa.org Tourette Syndrome Online 3139 West Holcombe Blvd., Suite 265 Houston, Texas 77025 www.tourette-syndrome.com Tourette Syndrome Plus www.tourettesyndrome.net Traumatic Brain Injury Brain Injury Association of America 8201 Greensboro Drive Suite 611 McLean, VA 22102 Phone: (703) 761-0750 www.biausa.org Brain Trauma Foundation 708 Third Avenue New York, NY 10017 212) 772-0608 www.braintrauma.org National Head Injury Foundation 1776 Massachusetts Avenue, NW Suite 100 Washington, DC 20036 202-296-6443 800-444-6443 |